A Capital Campaign for the RECREATION COMPLEX

Expanding recreation activities available at The Els Center of Excellence® campus.

Recreation Complex

Derrick Freeman

Derrick Freeman is a self-taught artist diagnosed with Autism, a neurodevelopmental disorder characterized by impaired verbal and non-verbal communication.

By age two, he was completely non-verbal and was unable to learn and use language like most children his age. By age three, art became his only form of communication. He learned to express his perceptions of life and everyday living through his drawings and artwork. Each piece of art tells the story of his journey with Autism.

Derrick continues to break down the barriers of Autism through sharing his unique artistic talents with the community. He has exhibited his artwork throughout Tennessee including the Tennessee Governor’s Mansion, Vanderbilt University, Lipscomb University, the Tennessee Disability Mega Conference and the Knoxville Museum of Art. In addition, he has been the recipient of several awards for his community advocacy work for the Autism community, including the Arc of the Mid-South’s Outstanding Artist and Performer Award and the Future Horizons Inc’s Dr. Temple Grandin Award for Outstanding Success.

As of January 2019, Derrick is the youngest artist and only artist with Autism with studio space at the Knoxville Emporium Center in Knoxville, Tennessee. Derrick resides in Knoxville, Tennessee with his mother Angela Freeman-Hunter. His hobbies include: reading, traveling, painting and advocating for more social inclusion for individuals with Autism through his non-profit Our Place Art Organization Incorporated, which he co-founded with his mother Angela Freeman-Hunter. Our Place Art was established to enrich the lives of individuals with Autism and other disabilities through the arts.

For additional information about Eyes of Faith by Derrick Freeman, visit his art website: www.derrickfreemansart.com.

For additional information about Our Place Art Organization Incorporated, visit the non-profit website: www.ourplaceart.com

A Brief Summary of Housing Options

Many of us wonder what the future holds for our friends and relatives with autism spectrum disorder. Will they stay at home with family? Live independently? Or will they need supports while living elsewhere?

While these questions can be stressful to contemplate, there are a growing number of housing options that provide the right environment, and cater to the special needs of people with ASD.

Here are a few residential options one may consider for individuals with autism, ordered by level of independence expected, from lowest to highest.

Supported Living 

Why: Supported or Assisted Living Programs may have staff members or supports built into a program, or they may need to be provided through family or outside help. The most common of this type of option is the Group Home, where an individual lives with others in a house, surrounded by other people with disabilities, where the support can be built-in.

Price of Average Living Space:

Many supported living programs allow either privatized funding for everything or involve subsidization through governmental programs.

Price of Supports: Depends more on where you can get the assistance or if the assistance is available.

 

Intentional Communities  

Why: Intentional Communities, like Promise in Florida, or Malbridge in Austin, Texas, are meant to provide a variety of experiences (depending on the level of independence) catering to the special needs communities.
These communities usually have working options to build up valuable experiences and gain greater financial independence, even in income-sharing communities.

The picture featured in this article is of Sweetwater Spectrum Housing, which is an “Intentional Community” in Sonoma, CA.

 Price of average living space: Varies. There are all sorts of communities out there, and pricing is based on ability/skill level and location and amenities.

Price of supports: Depends on what level of independence one prefers. Supports are included in the overall community costs.

 

Independent Living Programs

Why: In an independent living program, the individual lives in an apartment complex, learns valuable life skills, and can get help from tutors within the program. The individual can learn how to do the laundry, run the dishwasher, cook food, etc.

Price of average living space: $2,500 – $5,000 dollars depending on the level of independence expected and region of the country.

Price of Supports: Supports are included within the programs. As this caters to a more independent clientele, supports are provided in a counseling matter.

 

Conventional Housing

Why: As many know, there are people with autism who live on their own, successfully—I am one of them. I love the independence of being in my own apartment, with every space free to traverse, but it is not for everyone, especially if one can get lonely.

Price of average living space: Depends on fiscal realities. My apartment is $1,430 a month, excluding payments to the power company and any additional expenses.

Also important to note is that there is Section 811 Housing, which subsidizes housing, through the government for an individual with a disability whose income is low enough to qualify. Read more here: https://www.benefits.gov/benefit/5892

Price of Supports: Not covered through this option.

Parent Testimonial: Job Coaching

Ever since I first started working with the Foundation, one of the rewarding experiences has been working with Mrs. Shelly Hedge, who may have been the first person I talked to who shared about having an adult son on the spectrum. While her son, Collin, is not a talkative individual, through all of the time that I’ve known him, watering the plants on campus and shredding papers, and participating in our programs and services, he stands out as someone whose communication is more so through his actions than just through his words.

Through this interview, I decided to ask Shelly about her role at the Foundation, the meaning of job coaching and how Collin has been impacted by his experiences having a job coach helping him.

Can you tell us the role at the Foundation and what led you to pursue working here for us?

I am currently the Accounts Receivable Manager.  I started volunteering with the Foundation in the beginning when the first event Liezl’s Tea Party was introduced about 12 years ago.  I have been very involved in volunteering and started working at the Foundation 5 years ago.  My role initially was to assist Belquis with accounting and it has grown since.

What exactly is job coaching?

Job Coaching is for our adults on the spectrum who need assistance in the work setting.  Collin has been working since he graduated from The Learning Academy.  He has had a job coach with him throughout to help train him the responsibilities he needs to complete.  The job coach also keeps him on track with his schedule and can redirect if behaviors occur.  They are the voice for our Adults on the spectrum.  Without a job coach, Collin would not be able to work in the community.

Can you describe who your son is, and how his life was impacted by job coaching?

Collin is 25 years old and he is a very active and hard working young man.  He thrives on structure and needs to know what is expected of him.  Collin worked in a Country Club helping to set up their card room.  This involved cleaning the entire room and setting up their drink and snacks.  The job coach determined what supports Collin needed and created a task list/schedule that he could follow.  Another huge support was his communication device, which he used when he was getting stuck and not able to communicate his wants/needs.   Collin also has a part-time job at a therapy office, where he has a list of duties including shredding, restocking, cleaning desks, and some administrative work.  There his coach would make sure he stayed on task, and also keep his vocalizations and behaviors at a minimum.  Collin thrives when he is kept busy.

What makes job coaching play such a big role for those on the spectrum?

The role of a job coach is essential because without them Collin would not be able to work.  He relies on the support and redirection that is guided by his coach.  As I said above, they are the voice of our adults and they assist in organizing the tasks so they can be completed to the best of their ability.

What would you recommend to people interested in finding a job coach for someone who is autistic?

I would say it is essential, even if your adult on the spectrum is higher functioning.  The Job Coach sets up the environment that is conducive for the adults on the spectrum.  Each one of us is unique and that is the same for those on the spectrum.  Their needs are essentially different for every individual.  Having a voice where you may not be able to express yourself is what makes the job and employee successful!

 

——–

I would like to thank Shelly Hedge for participating in the interview, and would also like to thank Collin Hedge for serving as a prime example for those who wonder how job coaching can impact the lives of those they love with autism, or even if they are considering one for themselves. And, lastly, but certainly not least, the different job coaches, including our very own Rita Woolley on a Podcast being recorded for the month of August, for being so supportive to people like us.

Grand Finale To Be Rescheduled to 2021

 

FOR IMMEDIATE RELEASE

Jupiter, Florida (July 30, 2020)—

Out of an abundance of caution for our donors and with recent travel restrictions to and from The Bahamas, Els for Autism has decided to postpone its 10th Annual Golf Challenge Grand Finale. The Grand Finale was scheduled to take place at the Baha Mar Resort in October 2020 but has been rescheduled to October 24-26, 2021.

Golf Challenge regional events will go on as scheduled, on a case by case basis. The health and safety of our supporters remain a top priority, and all recommended guidelines from the Centers for Disease Control and Prevention (CDC) will be followed at every event. Precautions include social distancing, facial coverings, hand washing, and additional disinfecting and sanitation procedures.

“We continue to be amazed at the support and generosity of our Golf Challenge family,” Ernie Els said. “Our presenting sponsors, SAP and Wine Spectator, as well as our other sponsors and grassroots fundraising teams, have stepped up even in these most challenging times. I look forward to toasting all of you at our 2020/2021 Finale in the beautiful Bahamas.”

All Golf Challenge teams and sponsors that raise at least $15,000 in 2020 will be invited to the 2020/2021 Golf Challenge Grand Finale. Additionally, any team or sponsor that fundraises an additional $15K in 2021 will be invited to the Golden Circle Club at the 2020/2021 Finale. Access to the Gold Circle Club includes an extra night of accommodation and a bonus round of golf.

If you have any questions, contact: Paige Scollard, Events Manager at 561-320-9532 or paige.scollard@elsforautism.org.

Learn more about the Grand Finale and view a list of FAQs.

Summer Camp Goes Virtual Thanks to Support from Admirals Cove Foundation

Our team at the Foundation has been working diligently, shifting many programs and services from in-person to virtual.  Our goal is to help families keep some routines as they navigate this difficult time.

One of the largest virtual endeavors has been a six-week virtual summer camp, providing opportunities for individuals to actively engage with staff and peers while participating in a variety of activities. Campers have been busy with at-home scavenger hunts, story building, guest instructors, and even virtual golf! A special theme each week keeps campers engaged and excited for new activities. Highly skilled staff in the areas of recreation, speech and language, behavior analysis, fitness, special education, and music therapy facilitate the activities and provide support to enable individuals to participate in activities with their peers.

This summer’s virtual camp was made possible through a donation from the Admirals Cove Foundation, the philanthropic foundation of The Club at Admirals Cove, a private community in Jupiter, Florida. Admirals Cove Foundation is improving lives outside of their gates by making a meaningful impact in the areas of local health, education and social services in Palm Beach County.

“Since 2015, Admirals Coves Foundation has been a generous supporter of Els for Autism,” Nicole Poundstone, Development Manager at Els for Autism said. “Their commitment to our cause means more now than ever.”

The Adult Day Training Program

When a young adult with autism has just graduated high school, what is their next step? Like any young adult, there are different paths they may take. Some may continue to further their education at university, while others will seek paid employment within the community.

There is another population of young adults with autism who have complex needs and may require a higher level of assistance and support transitioning into adulthood.

The Foundation has created a solution to fit these specific individual’s needs through its Adult Day Training (ADT) program, a daily life enhancement program to provide participants the tools to live productive, meaningful lives and opportunities for inclusion into their communities. The program uses the principles of applied behavior analysis (ABA) to provide an environment that supports and nourishes personal growth, learning, empowerment, and self-determination.

Julie Lobdell, ADT Program Coordinator, expressed her excitement about kickstarting the new service at the Foundation.

“The day we gathered in the conference room and told the families they were accepted into the pilot session will forever be ingrained in my mind,” Julie said. “The look on their faces said it all. They were so thankful!”

The initial pilot session served six participants and ran for two days a week. The program has since grown to 12 participants spanning four days a week. A new 3:1 ratio has opened up the program to individuals who require additional assistance.

The program offers activities within the areas of communication, daily living, health/wellness, and employment, focusing on each participants’ individualized learning needs. Activities have ranged from learning to care for animals to partaking in water Zumba classes.

Typically, the participants learn best with in-person instruction along with hands-on activities, however, when the COVID-19 pandemic hit, the team needed to think outside of the box to create a meaningful curriculum that allowed for online instruction to take place. Julie and her team embraced the challenge, working quickly to create engaging virtual vocational and independent living lessons.

Julie created a variety of presentations that essentially include all that the program offered onsite. The participants even took a virtual field trip via PowerPoint that had pictures of a previous field trip to a horse farm.

Wende Banks-Henderson said her son, Foster, struggled with the transition to virtual learning at first, however, when he started following the schedule and saw the interaction with others, he looked forward to getting on Zoom.

Though the participants have not been able to engage in physical activities together for the past few months, they are still able to strengthen their skills through online recreation classes.  Participant Shaun Deason, said he “enjoys learning about music, practicing drums, and loves yoga, which helps him focus a bit more.”

Participants have also experienced growth within their relationships through this new online learning.

“They have developed a good bond with one another, for example, if someone were late signing on, or not going to be on for the day; the others would ask where they were,” Julie said.

Overall, the program has accomplished a good deal under Julie’s direction and the commitment of the ADT team. Although these past few months have been difficult, it has only made the program­­—and its participants grow stronger.

Gary Gauba: A Supporter with Silver Linings Vision

Since the inception of the Els for Autism Golf Challenge in 2011, Gary Gauba has been an active supporter and participant. A successful entrepreneur, with a history of transforming start-up businesses, Gary adeptly took on the role of Golf Challenge chairman, spearheading a west-coast regional tournament each year since 2014.

Over the years, Gary has shown his genuine passion for bettering his community and giving to causes close to his heart. He has not only made significant monetary contributions to the Els for Autism Foundation, but he has also contributed his creativity and business acumen to improve events. He is known for placing his spin on his west-coast regional tournaments by adding wine tastings and putting contests. Additionally, he is an active partner in the Foundation’s fundraising programs, regularly contributing innovative ideas to drive annual giving efforts.

In light of the COVID-19 pandemic, the landscape of fundraising changed drastically. In keeping the health and safety of event participants a priority, the Foundation canceled or rescheduled all fundraisers from March through July. These changes have unfortunately impacted multiple golf challenge events the Foundation’s most significant fundraising activity.

Yet even in these difficult times, Gary’s dedication to Els for Autism knows no bounds. Armed with a can-do attitude and a silver lining vision, he suggested that the Foundation host a virtual poker tournament to enhance its fundraising efforts in 2020.

So, in just a few weeks, the Foundation’s event team quickly planned its first-ever Poker Night, with Gary playing an active role in inspiring his network to get involved and driving participation.

The Foundation is looking forward to hosting the virtual poker tournament on July 30, 2020, with participants around the globe playing to help those with autism spectrum disorder. All proceeds from the tournament will benefit the Foundation’s ongoing programs and services.

“We are truly grateful to all who have continued to support the Foundation throughout 2020,” Paige Scollard, Events Manager for Els for Autism said. “We are honored to have supporters like Gary, who continue to go above and beyond to help us in any way they can.”

To register for Poker Night, visit our website: https://www.elsforautism.org/get-involved/fundraising-events/poker/

The Els for Autism Golf Challenge events will kick-off in August. You can view the schedule and learn about the event social distancing guidelines here: https://e4agolf.com/

New Collaboration with the Autism Science Foundation Offers Support and Camaraderie to Siblings

In April, Els for Autism Foundation began offering a virtual support group called “Sibs Stick Together” a group for siblings of individuals with autism. The Foundation had initially planned to hold the group in-person; however, as concerns about COVID-19 spread, the support group shifted online.

By this time, many siblings had been at home with their siblings with special needs for weeks.  The program team quickly realized how now, more than ever, siblings needed support and a safe space to share feelings.

“We are learning that when we provide support to the family, including siblings, we end up bettering the lives of the population we originally intended to serve,” Kimberly Rivieccio, Mental Health Counselor at Els for Autism said.

The virtual group allowed participants to log in from anywhere in the world to receive counseling, learn new coping skills, and connect with others.

In June, the Autism Science Foundation and the Els for Autism Foundation collaborated to create a series of four webinars, “Sam’s Sibs Stick Together,” with Samantha “Sam” Els, the daughter of founders Ernie and Liezl Els, serving as the ambassador and panel moderator.

“Sam’s Sibs Stick Together project is game-changing,” Erin Brooker Lozott, Clinical Director & Global Support at Els for Autism Foundation, said. “It is an initiative based on the philosophy that support generates ability.”

A spin-off of the “Sibs Stick Together,” support group, the goal of the series is to further research involving siblings and provide them with a support mechanism and means for connection.

“Siblings of individuals with autism spectrum disorder often take on a behind the scenes role in their family, though they frequently have just as great a need for support as does their brother or sister,” Erin said. “Focusing on siblings and their mental health moves their position from behind the scenes to center stage, assuring they can continue to provide invaluable support and insight to their families while also receiving care for themselves. Mental health and wellness are essential components in leading a happy, productive, and healthy life.”

The webinar series began with Alycia Halladay, Chief Science Officer of Autism Science Foundation, presenting research findings that focused on siblings and discussed resources available for siblings of all ages.

The panelists shared how their families helped support their relationships with their siblings, what they wish they could tell their younger selves, and factors that improve resiliency. Sam Els openly shared anecdotes about her experiences and relationship with her brother, Ben Els, who is on the autism spectrum.  The panelists quickly bonded over their experiences.

“I love seeing the instant connection these siblings have at various ages,” Kimberly said. “Many of them will enter helping professions.”

The webinar series will wrap up with a final webinar on August 14, 2020 at 2 p.m. EST.

Stay tuned for future programs focused on supporting siblings.

The Belief That Everyone has a Voice: The History of Augmentative and Alternative Communication (AAC)

From Rain Man and Temple Grandin, to Atypical and The Good Doctor, Hollywood’s portrayal of a person with autism is often someone who communicates their wants and needs verbally. However, anyone with a familiarity with autism knows that there is an often-misunderstood population of autistic individuals who cannot communicate verbally or communicate effectively on their own.

For many years, it was assumed that if someone’s thoughts weren’t able to be spoken aloud, they had intellectual disabilities combined with their autism. The barriers to communication represented a person’s totality.

Now, thanks to the development of current Augmentative and Alternative Communication (AAC) strategies and devices, such as the iPad and Picture Exchange Communication System (PECS), many people with autism can express their thoughts, needs, and wants independently.

This article will briefly summarize the origins of AAC strategies, systems and devices, beginning with one you may recognize–sign language. With origins in Ancient Greece, sign language has the distinction of being the oldest AAC system, with Morse Code, from the 19th century, being the second oldest.

In 1920, the first actual known AAC device, the F. Hall Roe Communication Board, was created. Co-developed by F. Hall Roe, who was suffering from Cerebral Palsy, the Communication Board contains letters and words that a person can point to and construct words or sentences. The distribution of such a device was made possible by the Ghora Kahn Grotto Benevolent Society.

The first electric machine used extensively to speak was developed in the early 1960s by hospital volunteer Reg Maling. A predecessor to contemporary computer keyboards and tablets, this machine was known as the POSSUM (Patient Selector Operated Machine), or a sip-n-puff. The device works by inhaling or exhaling through a tube-shaped device to send signals, typewriter controller that controls aspects of the surrounding area. While it was for home-use only, it was still an advancement during a time when the Disability Rights Movement started making progress.

A decade later, the first portable AAC devices reached the marketplace. The “Talking Broach,” a keyboard with a display fit for a breast pocket, and Toby Churchill’s “Lightwriter,” which was like the “Talking Broach” but had a longer two-way display, went on the market. The 70s were also known as when Speech Generating Devices (Or SGDs) started to make significant strides with devices like the “Handivoice,” which had voice output, portability and used numerical codes to create words.

The next time we approach the subject of AAC strategies and systems, we will explore its more contemporary history and the myths associated with AAC.

Image Credit: https://www.researchgate.net/figure/The-F-Hall-Roes-communication-board-consisted-of-letters-and-words-printed-on-Masonite_fig8_6196605

Now Accepting Autism Spectrum Award Nominations

Nominations are now open for the 2020 Autism Spectrum Award! 

The Els for Autism Spectrum Award honors an individual with autism spectrum disorder who has shined a positive light on autism through his/her character, positive attitude, and contribution.

The 2020 winner will be honored at the Els for Autism Golf Challenge Grand Finale.

Nomination Criteria: 

All nominees must:

  • Be an adult with autism spectrum disorder (age 18+).
  • Give consent for their nomination. We ask that you discuss your intended nomination with the nominee and/or their guardian and secure their consent for the nomination.
  • Be residents of the U.S. or Canada.
  • Have a valid passport

Nominee may:

  • Have demonstrated significant achievements in their own personal context.
  • Be an inspiration to other people with autism and a catalyst for helping people with autism fulfill their potential to lead positive, productive, and rewarding lives.
  • Be accomplished in any area of endeavor (arts, employment, community service, recreation, etc).

Employees of the Els for Autism Foundation and/or their immediate family members are not eligible to participate.

 

Nomination Form closes on July 31, 2020

 

Submit Your Nomination

 

For more information please contact:

Dr. Kerri Morse, Adult Services Manager
Email: kerri.morse@elsforautism.org
Phone: 561- 320-9523